8 months with dragonfly tears

Reflect: Sunday the 21st marked 8 months.

Eight months of grieving and missing, and waking up and realizing that it wasn’t a dream, but that my sister is gone and I miss her every single day. I still find myself thinking, “Oh I can’t wait to share this with… I know that Debbie would love…”

Acknowledgement: It wasn’t until a day later that I really had a full, long cry of sobbing, angry, and sad tears of longing for my sister.

Find joy amidst the tears, always: I went back to her youtube channel and was watching videos she had posted for me throughout the years. I was trying to remember her voice perhaps. Hearing it made me realize just how much I missed it. Those quick chats, phone messages, and conversations I thought would always be available until two year’s ago reality clunked into view. Hearing the intonation of her sharing her thoughts in her vlogs throughout the years she lived in Hong Kong made me smile and laugh.

The tightness in my chest released with the flow of tears that over came me.

Communicate: While enjoying the view of our beloved, Portland Rose Garden recently I remarked to to my husband, “I sometimes find it hard to believe that she is gone because I feel like she’s right here with me, like in my heart, but I know the physical reminder is there.”

rose 2016 PRG

Maybe that is why it was so hard to watch the videos….because it reminds me that she isn’t here, physically any longer.

Miracle moment: I had a beautiful moment while meeting a friend the day before the 21st. She had just sat down and a dragonfly fluttered by and landed briefly on her head. It was beautiful, sleek, green, with iridescence.

Dragonflies.

I never would have thought it before, but whenever I see one, which has been very frequent this summer, I know it is a sign from Debbie. A little glimmer that her spirit has transformed and she is listening from afar.

I smiled and said, “It was a dragonfly! Whenever I see a dragonfly I feel like it’s a message from my sister, she’s here with me.”

I had a recurring dragonfly encounter while visiting Utah this past June. I was walking to and from my friend’s research building on a campus in SLC. I exited the building and made my way across the grass that laid underneath the scorching sun and 100 degree day’s heat. Suddenly, I was being ushered to my bus stop by a fluttery friend, a beautiful dragonfly. It flew with me for about  a block and disappeared. Sure enough, on my way back hours later, the dragonfly visited again when I trudged back towards the building.

Same thing the next day.

Nature provides the best escorts, what can I say?

Take Action and Honor: This past month I completed a wish for Debbie. Well, really began the process after careful consideration, thoughts, and emails with a couple of her close friends. I began the process to archive her personal blog in order to create a book of her work that she cultivated while trying to cope, survive, and research her experience with cancer.

Find healing: It felt cathartic, and challenging to work on it extensively. I realized how important it was for my words to be as clear as possible in the creation of the forward and afterward, and the importance of the bibliophile I was writing about. Honoring her memory, her work, and her perseverance brought me closer to understanding what an amazing woman she was.

Small miracle moments of hope fly all around us. Sorrow has been transformed into something beautiful, effortless, and full of joy.  Watch for rainbows and dragonflies friends. And of course, for sparkles in the light.

Dalai Lama on Loss:

Kill ’em with kindness

“Kill ’em with kindness dear.” These were the words that my father always said to me growing up when I would complain about a situation at school with a friend. “Be proud of the choices you make every day.” I later learned and taught myself: You always have a choice that no one else can take away from you: the power of your choice to respond right now.

Respond with love or respond with the ego and use anger?  Why be so defensive any how about any choice made in life?  Shun the negativity or consider it as a lesson to learn from? Which one do you want to choose? This is what I ask myself.

When I stop and recognize that I have to, “delve a little deeper,” and figure out what is bothering me within then I can free myself from seeking the approval of another. There is no way to make someone else happy or feel better about who they are deep inside their being. The only way for someone to truly be happy is to make peace within, find the miracles in the day to day life that they’re blessed to lead, and use the “F” word as Gabrielle Bernstein writes and speaks of, forgiveness. Forgiveness of self, of others (for doing the best they can), and for the experiences that we encounter and choose to respond to.

The following song embodies the concept of kindness and forgiveness through the manifestation of a song sung by Selena Gomez.

Life is far too short for perceptions of a distorted reality, victim mode truths, and anger. I would much rather get real with myself about life’s most important opportunities: love, life, humanity, nature, and caring for myself. Sometimes it is scary for people to see your reflection of love and not responding with anger when provoked. I had never really liked the phrase, “Hurt people hurt other people,” or at least they try to. No one can truly steal your joy, your truth, or love unless you allow them to walk around in your brain and consciousness. Putting myself, my health, my happiness, and love first allows me to be happier human. My experiences do not define me, it is how you choose to respond to them that can transpire into something far greater as a reflection upon yourself and your soul.

Labels or Love.

A long time ago I was slapped with labels that were hard to understand as a child, but became quite vivd when I looked deeply at the perceptions that swirled around my exterior.

Label: Female

Label: Daughter

Label: Sister

Label: Friend

Label: Jew

Label: White

Label: Quiet

Label: Nice

The trouble with a label is the sense of belief that goes along with the label itself. When you start to believe in the label itself being more important than what you offer as a human being, you run into trouble.

Ask yourself what labels you see when you look into your own eyes in the mirror?

Who do you see?

Do you see skin?

Do you see hair?

Do you see you or what you perceive to be yourself?

I have been working on a journey of self discovery for the past 40 days. It has been a rocky uphill mind battle that has brought me to a precipice of sorts. I see happiness and love, or I see what I have learned to identify as my ego and fear.

It’s a conscientious choice that you can make with yourself, to think.  Much like a label. As a human you have the ability to think, to consider, and then to act.

Before you speak: think.

Before you respond with words: consider, are your words those coming from who you truly are with love or from your ego and fear?

While you think: choose the words you wish to share wisely. Once said, a word cannot be taken back.

Act with love and integrity.

Love before labels.

I stumbled across this amazing video which spoke to me from Prince Ea:

 

Action vs. Mirrored Silence.

Do you want to know a secret? 

All human beings are made of the same matter.

We are all the same beings on this planet we call Earth.

Yes we may have varying degrees of desires, perceptions, experiences, memories, and emotions.  BUT, we are all the same.  We come in this world the same, and we go out the same way.

I normally write about my experiences in life while focusing on the themes of love, raw emotion, and my truths. Here it is plain and simple: taking another human’s life is never ever, “ok.”

Having watched someone so close to me die this past year I felt the intense urge to NEVER have anyone else go through the same gut wrenching pain that I felt. EVER. I know that this feeling was irrational, but it was how I felt at the time.

Watching, reading, and considering the events as of late that have transpired in the United States of America in the last few years, let’s not mention the last couple centuries, I felt at a loss. I wanted to hug all of the family members who had lost the lives of their dear ones, and sit and listen to their stories.

I am referring to the list of black men, women, and children who have been gunned down at the hands of racist, despicable human beings in positions of both authority, and regular citizenry. When I stop and think of the faces of these beautiful humans walking down the street, sitting in church, driving their car, walking in a stairwell, I can imagine myself in that position. I know that white privilege exists. I have seen it unfold in schools. I have seen it transpire in grocery stores. I have seen it acted out upon my friends, my students, and my community members. THIS is not, nor has it ever been ok. Racism is a problem, and it always has been. One of the reasons I became a teacher was to empower youth to learn, to learn from one another, to inspire each other with experience, value culture, empathize through their struggles and work in the classroom, and above all, learn to love one another. Through education and our voices may we spread the idea that we are all valuable humans. No one human is better than another ever. Human life is what it is: life. #blacklivesmatter

I am referring to the young children, teachers, and administrators murdered in Sandy Hook. I am a teacher. The moment I heard this over the radio my thought process went immediately to, “How would I protect all of my students if I was in that situation?”

I am referring to the beautiful people dancing and enjoying themselves at a Pride Celebration. No one should ever feel so entitled as to march their way in and despicably take the lives of human beings whose only crime was love and joy. I cannot imagine any of my friends in a dance club being gunned down by a hateful person.

It is abhorring to see what has unfolded at the hands of human beings.

ACTION: I did a little research that took me exactly thirty seconds to find out the following:  I searched for a state legislative address by, googling the state representative for my city of residence, and there popped up all the information I needed. I am currently working on a draft of a letter that I will send every day for as long as it takes to stop the madness of gun violence. 

I challenge my fellow bloggers, friends, and humans to do the same. You want action? Write an email, write a letter, and send it daily. Flood the boxes, in-boxes, voice mail boxes of your state representative until your voice is heard. Posting on social media is one form of activity. I challenge you to take it to the next level.

Life is a precious gift.

Every day you wake up.

You breathe in, you breathe out, and you have a choice to do something with your life.

If you value this gift, than act upon it and speak up.

Life should never be cut short because of the ignorant whim of another human being.

 

life

 

Mind shifts day 9.

Once upon a time there was a little girl who was gloriously happy. She would sing, she would dance, she would play in her world of imagination. She saw possibility in the impossible. She said unabashedly what she wanted to without fear. She questioned, and she believed in miracles.

She was disillusioned by the world when she began to see the shadows of doubt become life forms around her. Fear became an embodiment that soon became a practice of thinking. 

Self doubt set in and the voice of love dissipated  from within.

Further down the line, the voice of love re-emerged when the sense of independence became possible. Clear air circled, perspective shifted, and education of communication, relationships, and the journey of adulthood began to take fruition. Through personal commitment to growth, shifts began to transform her perspective. The sea of voices became drowned out. Surfaces of light flickered, but never formally ignited.

In the hallows of the last year, the shifts have become more pronounced and ever changing.

You see, when you face your ego which drives the fear mindset, you become able to release it.  The constant self doubt, negative self talk, and pervasiveness that once embodied my desire for love evolved into a light that was once submerged.

The tiny girl, the happy dancing, gleeful child is re-surfacing. She does not give in to the harried surroundings or burbling thoughts of negativity any longer. She reflects, she chooses a mind shift, a perspective of positivity, possibility, and a power from within. 

What would happen if we all reconnected to the ~ing that we started with in life? What would he or she have to say about who and what we are today? What would they think about ourselves and our perspectives of this life that we lead?

Do yourself a favor and consider Gabrielle Bernstein’s work.

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M.T. to end M.S. Benefit Concert

MT to end MS poster

On July 8th, 2016, at Portland State University, we will be presenting a benefit concert titled, MT to end MS. This is a concert that has been six years in the making. One that my husband, our friends, and family have helped us to bring to fruition. We will be joined by four friends to present a musical theatre concert filled with humor, hope, and harmony. If  you feel so inclined to join us, or purchase tickets for other people to attend, if you live far away, please visit this website for ticket information: http://www.brownpapertickets.com/event/2554413

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M.S. 

This is an acronym that stands for multiple sclerosis. 

What does that even mean? To me it means my husband has a disease that we have minimal control over. It means that six years ago his health changed, our life together changed, and we face it together to this day. M.S. means that with research, with funding, and with clinical trials there may be a cure in our lifetimes.

The technical explanation goes something like this: M.S. or multiple sclerosis can be a disabling disease that affects the central nervous system in a human’s body. The central nervous system controls everything you do as a human. Consider this, when you lift your hand or arm, you use your nervous system.  If you have to turn a certain direction and move your head, or perhaps you want to articulate the protocols for a specific procedure at work; your recall of thought comes from… you got it… the central nervous system. The central nervous system in turn controls the ability to follow through with your desire and your independent function in life.

The fascinating and frightening thing about M.S. is that something signals the immune system in our body to attack the brain and spinal cord. After these attacks take place there are lesions or ‘spots’ left on the brain that indicate with MRI that the person has MS.  We were told once to think about it like this:

Do you own a vacuum?

Does that vacuum have a thick cord that plugs into the wall?

Yes?  That cord, if cut open has a thick outer layer protecting all the complex wires beneath the cord.  That cord is similar to your spinal cord, and all the nerve fibers coursing through your brain. Except that in your brain these are covered with what is called myelin.  This myelin is similar to the vacuum cord’s plastic covering.  The outer layer that protects your nerve fibers and spinal cord is a vacuum cord essentially.

The immune system will suddenly attack the myelin all the way to the core which will then interrupt signals that are sent to the brain and leave lesions or spots from the damage. Therein causing unpredictable symptoms such as numbness, tingling, blindness, mood changes, memory problems, inability to walk, the inability to move your appendages, paralysis, this list could carry on and on, it depends on each individual. 

For my husband it was numbness in his hand, arm, and later optical neuritis that signaled to us that something was going on with his body. Something serious. Something that took months and months to diagnose. At the end of a six month journey we had a diagnosis, we had met with many medical physicians, and finally we had found an amazing neurologist that gave us options for RRMS, remitting and relapsing MS. The unknown can seem daunting, however with knowledge, with questions, and with the ability to focus on the can do’s and not the can not’s you can move forward with your life.

Raising awareness for this cause is crucial, not just in a personal way for my husband and friends living with M.S., but for future generations to hopefully not live with or experience this disease.  For more information please visit the National M.S. Society’s webpage at: http://www.nationalmssociety.org/What-is-MS

All proceeds from our event will be put directly into the bike MS fund for my husband’s 2016 team.  All funds received go directly to the National MS society for further research to find a cure.  Thank you for reading this friends. Have a sparkling day.

Note: I first wrote of my husband’s journey years ago before his first Ironman Competition. It was titled, “Footprints Along The Way,” and can be found in my blog archive list for July 2014.

Dear Debbie, Vol. IV

Six months passed yesterday.

With the warm breezes of June it swept in like a burst of sandy wind across the skies in Utah as I saw the day pass by one moment at a time. The sun beat down, the sky stretched out blue, cloudless, like a picturesque day.

I found myself breathing easier, although embarking on my own new journey brought more mental work than I had anticipated. Exercising your mind, your spirit, and your essence of humanity takes conscientious thought, strength, and work. That is where I am currently residing at the present time. I found Gabrielle Bernstein’s work and have been knee deep in the majestic possibilities that time, thought, and love can bring forth.

I listened to the Dalai Lama yesterday. He was visiting the University of Utah for a special engagement. You would have loved his words, his insight, and especially his humor. I found this particular story enlightening:

A question from the audience was answered by the Dalai Lama, “My father passed away from suicide recently. I find myself filled with sadness all the time. What guidance can you give me about the place that he is now in?”  The Dalai Lama ended his explanation of what grieving may look like with the words, “No amount of sadness can bring your father back….Your father can feel your sadness if you remain as such…you must work to fulfill his will and live.” One more phrase that spoke to me was, “Compassion, love, open mindedness, investigation, questions, these bring forward the opportunity for answers.”

I felt that it must have been beshert that I was here in Utah. Here visiting Katie. Logged into the wifi as a guest, saw the universities home page and was struck by the opportunity that laid out in front of me…the Dalai Lama, his message, and the sense of love that his presence provided was eloquent timing for me as a mere mortal on Earth.

If I were to recount what the past month has brought forth in my small little world, our Oregon community, our nation, and our world it would be filled with joys, with sorrows, and with a flood of tears and rainbows. I do not wish to recall this list because I know that your presence is felt and already knows.

I will end this blog with a beautiful array of faces and places that mark moments on this journey. I shall leave this blog with some quotes from your sweet boy who enlightened me days ago.

“Aunt Rachel, what do you think death is like? Does it all go still and black, or do our bodies stop, but our mind goes somewhere else?  Wouldn’t it be cool if we went on to continue with our thinking, and go to this other place?!

Sometimes I think about what other people have seen, you know? Like what has he or she seen in their life? In their experiences. I want to know!”

I’ll end with this quotable moment…

happiness-quote-from-gabrielle-bernstein-s-may-cause-miracles-a-40-V3lL0y-quote

Stop. Just breathe.

Stop.

It’s a four letter word that has power. It holds the opportunity to communicate a clear, yet simple message.

So why is it so hard to say?

It is the one word I use when a student is being inappropriate, a boundary violator, or seeking my advice as to what to say when someone bothers them.

Say, “Stop.”

What is it about all this noise around us today? It seems to be a spinning vortex of information, misinformation, communication and miscommunication. It is nestled into every moment of every day.

Stop.

Are you listening?

Do you listen when someone speaks, or do you wait to respond? Sometimes I do both. It’s a work in progress.

Do you ever find yourself oversharing or emotionally vomiting with words?

Stop. Just say, “STOP self.” And do just that, stop.

No one needs to be the bearer of your misinformation, your quandaries about another, or the oversharing bulldozer of what is unnecessary data.

Hanging in my classroom is the following poster below that has the word THINK written vertically. It was made into an acronym for a few concepts.  I saw the idea online a long time ago, and I made my own poster. Consider the following before you speak, share, or “share” through social media…

T-is it TRUE?

H-is it HELPFUL?

I-is it INSPIRING?

N-is it NECESSARY?

K-is it KIND?

All too often we are not provided or providing the possibility for communication that is quality, confidential, and kind. Listening to my friends, my loved ones, my colleagues, my acquaintances, often times I see my reflective behavior in them. My energy level shifts, my mood can fluctuate, and can be a barometer at times unless I truly concentrate on what the person is saying, before I allow my emotions to come forth.

I have practiced something with my students this year called, “problem solving mediation.” Now, it might sound simplified and silly, but it is the same elemental principles in having a crucial conversation as an adult. It can be challenging, but with continued practice, it can work.

Instead of saying, “YOU this, you that, you are, you did that….stop and think.” What impacted you as an individual? The, “I, me, my, mine of the issue.” Start with an I statement, breathe, and proceed providing adequate time for the other to share and communicate when they are done.

Now, it does not always solve every issue, but I do feel that learning the basic techniques of communicating your personal perception, emotion, concern or question is essential for little and older people alike. Start with the I, use THINK, and then communicate. It is better to attempt to work it out, then ruminate on a negative vibe or feeling that festers with time.

If I have learned anything from my losses this year it is this…

Life is too short. Don’t waste it with, “I’m going to….you should’s, or he that’s…” speak up, enjoy it, work on it, make progress with the simple steps you take every day.

If you need to take some steps backwards for grounding then do so.

Quit apologizing.

Stop agonizing.

Get up, get moving, and start doing.

Do for you, do for Debbie, live and enjoy what you are offered today, and simply be grateful for the opportunities that are presented.

As challenging, as uncomfortable, or as difficult as they may seem.

Face it. Live it. Love it.

Breathe.

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Dear Debbie Vol. III

Today marked five months.

Five.

I still approach the number twenty one now with caution and angst.

Today was a long day. I had this urgency to clean. To clean everything in the house. I am sure that part of it stemmed from wanting to,”spring clean,” prep for people coming over, but also a deeper reason that lingered beneath the surface.

I wanted to clean and get something out of my system.

I clean for two hours and sweated it out while scrubbing versus dancing today.

Then I spent two hours in the car going back and forth to what I thought would be a first activity at the D. Center for Declan, which turned into hours in the car…. Oh well. Ce la vie. There will be other ones. Lesson learned: always check the location especially when they do not communicate it to you.

A few things I want you to know about life in the last two months since I last wrote to you:

~Everything changes regardless of your emotional or physical state. It all changes, constantly. I know, “news flash…” right?!

~Spring has sprung: My tulips bloomed and blew away. My irises grew and opened, and stood tall and proud. They made me think of you every day and how much you loved purple irises, just like mom does. I brought her some on Passover.

~Passover was lonely without you to sing Dayenu with. I missed you. Terribly. Especially our silent communication we would have with subtle eye glances across the table.

~Declan has gotten taller, and thinner, and gangly. I told him he might grow to be six feet five inches tall the other day. He rolled his eyes at me. I could feel it through the back seat of the car while we had the conversation about, “Why kids don’t drink coffee. … so they can be tall of course,” Hahahahaha.

~He won an award for his P. Theorem Project. You would have been so proud of your boy. He explained, THE WHOLE, thing to me, at the STEM Fair, and I listened intently to each word he said. Smarty.

~He made cookies with us recently and thoroughly enjoyed the experience. He told me today all about his Pioneer Camp/Field trip and how his favorite part was making biscuits. His love of carbs, like ours, runs deep.

~Declan still gives the best hugs, after Andy of course.  The squeeze you hard, hold on fast, and feel the love kind of hugs. That boy was taught right. Hug, hold, and love. ❤

Lastly these are my cosmic nature moments where I felt your presence the most…

I spotted a faint rainbow last month, it was one of those that are hard to see, but is fleetingly beautiful. If you rub your eyes, than it’s gone. But I saw it. I saw you.

When the robin followed Declan and I home on our walk before bedtime, she hop, hop, hopped after us, and then was there when walking down our street again. Watching, and hopping along, and waiting. I felt like she was this happy little robin mommy walking us home.

My crow crew greets me each day when I come home from work. I always think of the book and movie, “Cold Mountain,” when I see a crow. They say that they are the birds you see that represent your family who have come and gone. So I always think of you, and Grandma Lilli, and Grandpa Bob. I think that there must be some circular process to which nature presents itself as this loving force that reminds us of all that has been before us, with us, and that will come after us.

There are so many more things I want to tell you, and I do in my head, all the time. I am working on focusing my energy into all the positive memories we made. I am really trying ever so hard to retrain my mind on positive happy visuals of you and me and our family. I have found some books, positive mindset videos and speakers, and I am actively working on my mindset daily. Key word: work. Life is such a process. The journey is raw and real.

Lenore once told me something I remind myself of, “Grief is a part of our lives. It is an important part of life. But it is important that grief is not what makes up your life, or the only thing about your life.” Just know that I will heed advice and live and laugh profoundly, but I will always remember and say your name to whoever will listen. You left such a legacy of glistening moments in so many people’s lives. I love hearing their stories and collecting them. I learn from them, and I am beginning to let moments sparkle again. I am singing again, and it feels spiritually healing and also exposing of many wounds from the past that we shared and I am working on mending alone. I love you with sparkly tears.

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Raw honesty.

How are you….?

These three simple words are spoken by all of us. They are considerate, concise, and caring. Right? Absolutely. I appreciate them, I ask them myself, all the time. They almost seem to be a reflex of sorts.

Although, an inner part of me cringes when I am asked this question at times. Why?  I’ll be completely forthright with the thoughts that flood in succession when I search for the response that I choose to share….

Because sometimes I’m not ok.

Sometimes I don’t want to talk.

Sometimes I don’t want to answer.

Sometimes I want to laugh. 

Sometimes I want to cry.

Sometimes I want to punch something.

Sometimes I want to scream into the wind as I am driving on an empty road.

Sometimes I am really, really, scarily angry and sad at one time.

Sometimes I’m ok for a while.

And sometimes I just am and I wish not to share.

I release it when the emotions arise. 

I cry. 

I laugh, I laugh loudly, and I laugh often. 

I punch the air, I kick, I dance, I jump and work it out at my favorite place other than my home, D.D.

Our society sends mixed signals: Be ok at work, be ok here, be ok there, be ok everywhere, be you at home, be not here, be not with me, for I do not wish to see what you may see.

I choose not to suppress my emotions.

I will not mask them.

I will not pretend for others.

I will not choose denial as others so plainly do.

My life is to be lived authentically.

If someone does not like that, then that is their decision.

I believe that karma and one’s own inner battles will heal the wounds that gape open before them.

I will not partake in placation.

I do not pretend when not on the stage friends.

I see you.

I see me.

And I will do me, and you can do you.  

I choose to live my life with honestly. I will not replace what was with something that eases the pain. I am going to breathe through those jabs, and stabs of fear when they rise up within me.

This is the level ground to which my heart is beating upon. I am not just in the throws of grief for my beloved sister. I am at a loss for other personal things that have transpired in the last year; and I wish not to share them with the world. And all of my experiences become these twists that build upon one another like a cyclone inside of my mind.

Oh how it spins, and spins, and spins. 

My sweet husband asked me tonight, “Have you written lately?” To which I simply replied, “No.”  This is why.  I was not sure what I even wanted to say. I realize that is alright. It is after all, my blog, it is my prerogative, it is my life. So there it is. Real. Honest. Raw. My emotion with words stating the underlining meaning. Punctuating  with syllables and letters, these thoughts now formed into words that lay before me.

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